Date
Thursday, 10 Jun 2021 7:30 PM
MoCo Makers and the Captial Area BioSpace are parterning to put a team together for 2021 Hack for Rare – an event put on by MIT Hacking Medicine and the Children’s Tumor Foundation.
We intend to pick a hard problem and solve it, as a team. We are also happy to support you, if you are interested in doing a solo-project or a break-out team.
Learn more about the competition here:
https://www.synapse.org/#!Synapse:syn25551331/wiki/609856
At this event we will discuss some of the known science behind Neurofibromatosis (NF), a family of three conditions that cause tumors to grow on nerve terminations and other morbidities.
Hack4Rare had an introduction to NF – which you can watch here:
https://youtu.be/dR8Fojyc8tY
Hack4Rare also has a Slack channel you can join here:
https://join.slack.com/t/2021hack4rare-bvv2184/shared_invite/zt-q4rozvsx-nulauLB~pgOhPrySAeiZ0w
Also, Hack4Rare is offering complimentart access to the NF Conference:
https://www.ctf.org/get-involved/nf-conference
Using this code: 21HACK
In June we will do team-building exercises, and introduce some of the science behind each of the four possible tracks for the competition. In July we will focus on productive work to solve one of the problems in a competition area. The four tracks possible in this competition are:
1. Neurofibromatosis (NF1, NF2, schwannomatosis), a family of three conditions that cause tumors to grow on nerve terminations and other morbidities.
2. RASopathies (Cardio-facio cutaneous CFC, Costello CS, Noonan NS), a group of rare genetic conditions caused by mutations in genes of the Ras-MAPK signaling pathway (of which NF1 is one).
3. PTEN Hamartoma Tumor Syndrome (PHTS), a rare genetic condition that causes increased risk for certain cancers, benign growths, and neurodevelopmental conditions.
4. Desmoid Tumor, a very rare neoplasm that develops from fibroblasts. These tumors do not have the ability to metastasize, but they can cause significant morbidity and mortality by local invasion and they are prone to local recurrence.
I hope you will join us for this event. Be aware that in July we will switch from educational events to working-sessions only.
Introduction to Neurofibromatosis
Thursday, June 10 · 7:30 – 9:30pm
Google Meet joining info
Video call link: https://meet.google.com/aui-ghga-xgn